Search Jean Hailes
-

Adenomyosis

Explore information about adenomyosis, including the symptoms, causes and treatments.
Print / PDF

What is adenomyosis?

Adenomyosis is a condition where tissue, similar to the lining of the uterus, grows into the muscle wall of the uterus.

In the past it was thought that adenomyosis mainly affected women aged 40 to 49 years, but it’s now clear that the condition can also affect younger women (including teens).

Women with adenomyosis can often have endometriosis too, but the conditions are different. With endometriosis, the tissue grows in other parts of your body, such as your fallopian tubes and ovaries.

How can adenomyosis affect periods?

Adenomyosis can cause the uterus to thicken and enlarge, sometimes resulting in heavy or long periods and pain.

How can adenomyosis affect fertility?

Adenomyosis can cause fertility problems because the condition makes it harder for:

  • sperm to fertilise an egg
  • embryos to implant into the lining of the uterus
  • embryos to develop.

Women with adenomyosis also have a higher chance of pregnancy complications, such as miscarriage. Ask your doctor for more information.

Symptoms of adenomyosis

Adenomyosis affects each woman differently. About one in 3 women don’t experience any symptoms.

For women who do experience symptoms, they usually include:

  • painful periods
  • heavy periods
  • longer menstrual cycles
  • iron deficiency (anaemia) due to heavy periods, which can make you feel tired or dizzy
  • painful sex (dyspareunia)
  • persistent pelvic pain
  • bloating or pressure in your belly
  • bleeding or spotting between periods
  • blood clots during your periods
  • waking at night to wee
  • low energy
  • lower back pain or pain that goes down the legs
  • constipation or diarrhoea.

Causes of adenomyosis

We don’t know the exact cause of adenomyosis, and there could be more than one type. It may be related to:

  • injuries to the uterus (e.g. from surgery or childbirth)
  • tissue growing in the muscle wall of the uterus before birth
  • changes to your body’s immune system (a system that protects you from infections and diseases)
  • contact with chemicals that affect your hormones.

How is adenomyosis diagnosed?

Adenomyosis is usually diagnosed by asking about a person’s symptoms, reviewing their medical history and doing a transvaginal ultrasound or MRI to take a picture of the uterus.

Adenomyosis can be hard to diagnose because there are no agreed tests to confirm the condition. Adenomyosis can’t be diagnosed from blood tests or tissue samples (biopsies).

A diagnosis of adenomyosis is usually only confirmed after the uterus has been removed (hysterectomy).

Adenomyosis can sometimes be misdiagnosed as uterine fibroids or endometriosis.

Treatments for adenomyosis

Treatment for adenomyosis will depend on your symptoms, stage of life and whether you plan to have children.

When to see your doctor about adenomyosis

Talk to your doctor if symptoms, such as painful periods, stop you from doing day-to-day activities.