Jean Hailes for Women’s Health is committed to improving health and wellbeing outcomes related to women’s health issues. One part of our work is to ensure the very latest research findings are ‘translated’ into practical resources and education for both women and health professionals, so that the research is understood and used. We also connect research and consumer groups so that efforts to improve policies and healthcare, as a result of new research findings, are aligned and efficient.
Because we routinely collect and analyse experiences and data on women’s health issues from around Australia, we often provide knowledge and insights that help shape the research so that it best meets the needs of girls, women and people assigned female at birth.
Jean Hailes is part of two federally funded Centres of Research Excellence (CRE) and works with multiple groups funded federally by the Medical Research Future Fund (MRFF) and National Health and Medical Research Council (NHMRC)
Below are some of Jean Hailes’ current partnerships.
CRE WaND is a multidisciplinary team of researchers and clinicians from Australia and around the world seeking to build the evidence base to improve non-communicable disease outcomes for women across the lifespan.
Jean Hailes role within the CRE WaND is to support the development and evaluation of health information and provide expert advice on information and practice gaps reported by women.
SPHERE is improving the quality, safety and capacity of primary healthcare services to achieve better outcomes for women. SPHERE’s projects address evidence and practice gaps in abortion, contraception and preconception care.
Jean Hailes role is to support translation and dissemination of research findings and provide input and advice as a member of the SPHERE Stakeholder Advisory Group.
The AusCAPPS Network is a project within the Centre of Research Excellence in Sexual and Reproductive Health (SPHERE).
AusCAPPS is a multidisciplinary community of practice that supports GPs, pharmacists and nurses working in primary care to deliver long-acting reversible contraceptives (LARCs) and medical termination of pregnancy (MTOP).
Jean Hailes role is to provide advice about the content and delivery of the Community of Practice via the project Expert Advisory Group.
Endo-MP is a project within the Centre of Research Excellence in Sexual and Reproductive Health (SPHERE).
The Endo-MP project aims to develop and implement an endometriosis management plan to support the navigation and management of endometriosis and pelvic pain for providers and their patients. It is expected that primary care management will be at the centre of this plan.
Jean Hailes role is to recruit women to the Endo-MP project, provide expert clinical advice and participate in the Expert Advisory Group.
This clinical study funded by the Medical Research Future Fund (MRFF) will co-design and evaluate a new online supportive care intervention (CoDeEndo) for Australian adults living with endometriosis.
Jean Hailes role will be to recruit women to the CoDeEndo clinical trial and to provide advice in the form of feedback from women with endometriosis.
The En-DIT group are an Australian endometriosis research group comprising researchers, scientists, clinicians and consumers.
The En-DIT group is using MRFF funding for nine projects designed to better understand factors that lead to the development and progression of endometriosis, in line with the National Action Plan on Endometriosis .
Jean Hailes role is to support the translation of research findings from the group to support better diagnosis and care for women with endometriosis.
The Genetic variants, Early Life exposures, and Longitudinal Endometriosis symptoms Study (GELLES) is aiming to find out more about why endometriosis develops, looking at people’s genes and their health across their life, so that endometriosis can be diagnosed earlier and better treatments can be made available.
Findings from GELLES will help inform improved clinical guidelines for health practitioners, evidence-based information for consumers and national women’s health policy.
Jean Hailes role is to support recruitment to GELLES, and to support translation and dissemination of research findings.
MySurvivorCare is creating an online patient-driven stepped-care service delivery platform for the management of symptoms after cancer. The project has four stages:
Jean Hailes role is to support recruitment to the study, provide advice on applications and other documentation linked to the study and connect the research team with consumer representatives and other consumer input as required.
MySurvivorCare is funded by the Centre for Research Excellence in Women’s Health in Reproductive Life .
This project will develop a menopause assessment and decision-making tool that is integrated into the most commonly used GP software, so that key information is immediately accessible to GPs. The project will also co-design a digital self-assessment tool that women can use to report their menopausal symptoms before they visit their GP, to make sure those symptoms are not overlooked.
Jean Hailes role is to recruit women to the MenoPROMPT project and provide advice on developing plain language health information for women.
The HaPPI study is using MRFF funding to evaluate the efficacy and cost-effectiveness of yoga and cognitive behaviour therapy (CBT), compared to standard care-receiving patient education, to improve quality of life and reduce healthcare costs for people with endometriosis.
Jean Hailes role is to support recruitment to the clinical trial and to support the translation of research findings into practical information for people with endometriosis.