arrow-small-left Created with Sketch. arrow-small-right Created with Sketch. Carat Left arrow Created with Sketch. check Created with Sketch. circle carat down circle-down Created with Sketch. circle-up Created with Sketch. clock Created with Sketch. difficulty Created with Sketch. download Created with Sketch. email email Created with Sketch. facebook logo-facebook Created with Sketch. logo-instagram Created with Sketch. logo-linkedin Created with Sketch. linkround Created with Sketch. minus plus preptime Created with Sketch. print Created with Sketch. Created with Sketch. twitter logo-twitter Created with Sketch.

Together we can answer the questions of endometriosis

Research 28 Feb 2022

March is Endometriosis Awareness Month. Endometriosis affects an estimated one in nine women of reproductive age, with over 830,000 women in Australia having the condition.

It's a chronic condition where cells similar to those found in the lining of the uterus are found in other parts of the body. Pain is often a key symptom of endometriosis. It’s not known what causes endometriosis and it can only be diagnosed with surgery.

Magnifying glass research endometriosis

If you’re a person living with endometriosis, your voice could be the start of a breakthrough in improving our understanding of the condition and how it can best be managed.

By taking part in the newly launched NECST Registry, you’ll be joining others who also believe research is the key to finding answers for endometriosis. (NECST stands for National Endometriosis Clinical and Scientific Trials).

To have your voice heard and get involved in improving endometriosis care, participants are required to:

  • Be aged 18 years or over
  • Have had a confirmed diagnosis (via surgery) of endometriosis or adenomyosis, or have any of the below symptoms that might be caused by endometriosis:
    • persistent pelvic pain
    • problems with falling pregnant
    • bleeding between periods
    • heavy periods
    • pain when urinating
    • pain with bowel motions/passing stools
    • pain with sex
  • Be able to speak English
  • Be living in Australia
banner invitation - be part of endometriosis research

Take part in this research

Sign up to the NECST Registry

Sign up here

About the NECST Registry

The NECST Registry aims to build a complete picture of how endometriosis affects people’s lives. To do this, the NECST Registry collects information over time from people living with endometriosis, endometriosis-like symptoms or endometriosis-related conditions (like adenomyosis). The information will be used by clinicians and researchers to improve care, develop better treatment options and more affordable medicine for those living with endometriosis and adenomyosis.

About the NECST Network

Jean Hailes for Women’s Health is proud to be part of the National Endometriosis Clinical and Scientific Trials (NECST) Network. The NECST Network is an initiative to bring together patients, researchers, scientists, and clinicians; to study endometriosis and related conditions and improve the lives of those with the disease. It is funded by the Australian Government through the Medical Research Future Fund (MRFF) and administered by Jean Hailes for Women’s Health.