March is Endometriosis Awareness Month. Endometriosis affects an estimated one in nine women of reproductive age, with over 830,000 women in Australia having the condition.
It's a chronic condition where cells similar to those found in the lining of the uterus are found in other parts of the body. Pain is often a key symptom of endometriosis. It’s not known what causes endometriosis and it can only be diagnosed with surgery.
If you’re a person living with endometriosis, your voice could be the start of a breakthrough in improving our understanding of the condition and how it can best be managed.
By taking part in the newly launched NECST Registry, you’ll be joining others who also believe research is the key to finding answers for endometriosis. (NECST stands for National Endometriosis Clinical and Scientific Trials).
To have your voice heard and get involved in improving endometriosis care, participants are required to:
The NECST Registry aims to build a complete picture of how endometriosis affects people’s lives. To do this, the NECST Registry collects information over time from people living with endometriosis, endometriosis-like symptoms or endometriosis-related conditions (like adenomyosis). The information will be used by clinicians and researchers to improve care, develop better treatment options and more affordable medicine for those living with endometriosis and adenomyosis.
Jean Hailes for Women’s Health is proud to be part of the National Endometriosis Clinical and Scientific Trials (NECST) Network. The NECST Network is an initiative to bring together patients, researchers, scientists, and clinicians; to study endometriosis and related conditions and improve the lives of those with the disease. It is funded by the Australian Government through the Medical Research Future Fund (MRFF) and administered by Jean Hailes for Women’s Health.