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NECST Research & Partnerships


Australian Longitudinal Survey on Women’s Health (University of Queensland, QLD)

Prof Gita Mishra and Dr Ingrid Rowlands from the University of Queensland led the research into the prevalence and incidence of endometriosis in Australia. In partnership with the Australian Institute of Health and Welfare (AIHW), a report, “Endometriosis in Australia: prevalence and hospitalisations” on the national prevalence of endometriosis was published by the AIHW in August 2019. Using 20 years of data from more than 14,000 women from the Australian Longitudinal Study on Women’s Health (ALSWH), it was determined that one in nine women were diagnosed with endometriosis by the time they reached the age of 40-44 and there were around 34,200 endometriosis-related hospitalisations between 2016-2017.

The results of this study have also been published in a medical and scientific journal.

Endometriosis Digital Platform (Robinson Research Institute, University of Adelaide, SA)

Led by A/Prof Louise Hull and her team (Mr Marcus Goddard, Dr Beck O’Hara and Dr Diksha Sirohi) at the Robinson Research Institute (SA), the Endometriosis Digital Platform will be designed to respond to the needs of the endometriosis community, with a focus on the unmet needs and research into improving patient outcomes of those living with endometriosis. The platform will be co-created with the endometriosis community including the Australian Coalition for Endometriosis (ACE), people with endometriosis, and their supporters, and the Stakeholder Advisory Group (includes clinicians, researchers, health informatics specialists and IT developers).

This research is being supported by the Australian Government Department of Health and Jean Hailes for Women’s Health.