arrow-small-left Created with Sketch. arrow-small-right Created with Sketch. Carat Left arrow Created with Sketch. check Created with Sketch. circle carat down circle-down Created with Sketch. circle-up Created with Sketch. clock Created with Sketch. difficulty Created with Sketch. download Created with Sketch. email email Created with Sketch. facebook logo-facebook Created with Sketch. logo-instagram Created with Sketch. logo-linkedin Created with Sketch. linkround Created with Sketch. minus plus preptime Created with Sketch. print Created with Sketch. Created with Sketch. twitter logo-twitter Created with Sketch.

NECST Registry Working Groups

The NECST Registry Working Groups are a group of volunteer clinical and scientific experts formed to provide specific guidance on the development of the NECST Registry modules and minimum core dataset related to endometriosis.

1. Demographics and consent
  • Jason Abbott (Lead)
  • Gita Mishra
  • Grant Montgomery
  • Peter Rogers
2. Clinical presentation and medical history
  • Jason Abbott (Lead)
  • Sonia Grover
  • Louise Hull
  • Luk Rombauts
  • Anusch Yazdani
3. Patient reported outcome measures (PROMs)
  • Mike Armour (Lead)
  • Georgina Chambers
  • Melissa Parker
  • Anusch Yazdani
4. Imaging (ultrasound and MRI)
  • Sofie Piessens (Lead)
  • George Condous
  • Stephen Knox
  • Valeria Lanzarone
  • Jo Ludlow
  • Alexandra Stanislavsky
  • Kate Stone
  • Natalie Yang
5. Medical management
  • Louise Hull (Lead)
  • Jade Acton
  • Rebecca Deans
  • Susan Evans
  • Sonia Grover
  • Luk Rombauts
6. Surgical management
  • Jason Abbott (Lead)
  • Alan Lam
  • Emma Readman
  • Jim Tsaltas
  • Michael Wynn-Williams
  • Anusch Yazdani
7. Histopathology and biobanking
  • Peter Rogers (Lead)
  • Caitlin Filby
  • Caroline Gargett
  • Grant Montgomery
  • Wayne Ng
  • Luk Rombauts
Necst biobank graphic

Each of these modules will contribute to the overall dataset in the NECST Registry however, not all modules will be completed for each participant, since not all participants will require all interventions.

In defining the essential data items, we have referred to the World Endometriosis Research Foundation (WERF), EPHect Project that has SOPs and standardisation for data collection for endometriosis research.