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National Action Plan for Endometriosis (NAPE)

Endometriosis, a common yet under-recognised chronic disease, affects one in ten women and girls of reproductive age worldwide. It can have a significant impact on a woman's life.

Endometriosis occurs when cells similar to those that line the uterus grow in other parts of the body, usually around the pelvis. Although endometriosis is often effectively managed, it can lead to debilitating, chronic and persistent pelvic pain and compromised fertility. It can also significantly impact the social and economic participation and psychosocial health of those affected.

In Australia, it is estimated that one in nine women and girls of reproductive age live with endometriosis. However, delays in diagnosis and a lack of definitive research on the domestic burden of disease suggest the number could be far higher (Commonwealth of Australia (Department of Health), 2018). More research is necessary to better treat and manage the condition.

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Recognising the lack of funding for endometriosis research, in 2018, driven by passionate patient advocates and parliamentarians, the NAPE brought together clinicians, researchers and women’s health organisations. This was the first National Action Plan of its kind and is Australia's blueprint to tackle endometriosis, via:

  • awareness and education
  • clinical management and care
  • medical research.

The NAPE also details and defines the coordinated and structured strategy to:

  • improve awareness and understanding of endometriosis
  • speed up diagnosis
  • develop better treatment options and ultimately find a cure.

To download a copy of the National Action Plan for Endometriosis click here.

To find out what else the Australian Government Department of Health is doing about endometriosis click here.

For further information on endometriosis click here.

Please also see Jean Hailes' separately funded campaign to raise awareness around endometriosis #EndoWise.