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About the NECST Network

The Australian Government is investing in health and medical research to support emerging priorities and fill gaps in research efforts through the Medical Research Future Fund (MRFF) – Accelerated Research Investment.

The Government's aim of this funding is to:

  • improve patient outcomes
  • increase opportunities for patients to take part in clinical trials
  • increase collaboration between peak health organisations and researchers.

Jean Hailes for Women's Health has been provided with $2.5 million to be administered to research priorities identified under the NAPE.

National Action Plan for Endometriosis (NAPE)

Endometriosis, a common yet under-recognised chronic disease, has a significant impact on a woman's life, affecting 1 in 10 women worldwide. Endometriosis occurs when cells similar to those that line the uterus grow in other parts of the body, usually around the pelvis. Although endometriosis is often effectively managed, it can lead to debilitating, chronic and persistent pelvic pain and compromised fertility. It can also significantly impact the social and economic participation and psychosocial health of those affected.

In Australia, it is estimated that 1 in 9 Australian women and girls are living with endometriosis. However, delays in diagnosis and a lack of definitive research on the domestic burden of disease suggest the number could be far higher (Commonwealth of Australia (Department of Health), 2018). More research is necessary to better treat and manage the condition.

Recognising the lack of funding for endometriosis research, in 2018, driven by passionate patient advocates and parliamentarians, the NAPE bought together clinicians, researchers and women’s health organisations. This was the first National Action Plan of its kind and is Australia's blueprint to tackle endometriosis:

  • Awareness and education
  • Clinical management and care
  • Medical research

The NAPE also details and defines the coordinated and structured strategy

  • To improve awareness and understanding of endometriosis,
  • To speed up diagnosis
  • Develop better treatment options and to ultimately find a cure

To download a copy of the National Action Plan for Endometriosis click here.

To find out what else the Australian Government Department of Health is doing about endometriosis click here.

For further information on endometriosis click here.

Please also see our recent separately funded campaign to raise awareness around endometriosis #EndoWise.

Outline of the Research Priorities and the Establishment of the National Endometriosis Clinical and Scientific Trials (NECST) Network

The aim of this project is to build a national research platform that underpins a comprehensive national program of clinical, basic science and translational research relevant to the needs of Australian endometriosis sufferers, consistent with the research objectives in the National Action Plan for Endometriosis. Specific achievements will include:

  1. Development of a national Clinical Trials Network (CTN) that co-ordinates support for research organisations and conducts clinical trials for endometriosis treatments and services.
  2. Development of an Australian Endometriosis Collaborative Research Framework to support co-ordinated patient recruitment, consistent data collection and a national database and bio-repository developed from clinical trials and research projects for national and international research projects specific to endometriosis.
  3. Formation of a National Collaborative Network capable of responding to a targeted call for integrated endometriosis research focused on translational outcomes.
NECST program outline graphic16 9

Jean Hailes for Women’s Health

Jean Hailes for Women's Health is a national not-for-profit organisation dedicated to improving women's health across Australia through every life stage.

We work in public health, research, clinical services and policy. We pride ourselves on producing practical and easy-to-understand information for women and for health professionals. We do this by translating research and medical evidence, delivered in many ways to suit our diverse audiences.

In 2016, the Australian Government formally announced Jean Hailes for Women’s Health as the national digital gateway for women’s health and wellbeing.

Project Governance

The NECST Network Strategic Governance and Advisory Committees will ensure the MRFF endometriosis funding is managed and acquitted in accordance with MRFF Funding Principles and with research governance best practice.

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